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, by Ellen Kelleher

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Product details

File Size: 538 KB

Print Length: 52 pages

Simultaneous Device Usage: Unlimited

Publisher: Joseph R. Kelleher; 3 edition (May 3, 2014)

Publication Date: May 3, 2014

Sold by: Amazon Digital Services LLC

Language: English

ASIN: B00K4J08T0

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Amazon Best Sellers Rank:

#734,440 Paid in Kindle Store (See Top 100 Paid in Kindle Store)

I was really disappointed in this book. Part of that is my fault, since I made the assumption that this was a full book, not a 42-page booklet from which I learned absolutely nothing. Most of the book is taken up by personal stories - which can be helpful when you are facing a new diagnosis, and need to understand what your life might be like. However, this book entirely fails at being "A Guide to Living with Ehlers-Danlos Syndrome". The entire "chapter" (all of 3.5 pages) on coping is most about putting your faith in God, and accepting your diagnosis. While acceptance is key in moving forward with EDS, this book offers zero practical advice on how to deal with the daily difficulties of EDS.

Enjoyed the case studies/personal stories

Easy to read and very helpful for family and friends of EDS sufferers.

I haven't read a book in 4 yrs, but i saw that this book was out there for free and I myself suffer from EDS, ( the same subtype as the author), and I can completely relate in most ways to her struggles. There were a few spots of information about the history on EDS that were interesting and also it was nice to learn about coping. GREAT BOOK!!!

Great book. Gave a great insight to the disorder. Made my daughter feel less "alone" in the issues of living with EDS

Simple and basic book. Would have been glad for more in depth information, but it was a fast and easy read that gave a great over view.

Good info very interesting

very good reading for initial diagnosis --- thanks

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